Epilepsy Online Social Support: Characterizing topics and challenges shared in the r/Epilepsy community

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11 Nov 2026 0 comments

Epilepsy is one of the most common neurological conditions, and people living with epilepsy (PLWE) often use social media as a resource. However, a comprehensive understanding of the topics represented in epilepsy-specific communities where PLWE may be more honest is essential to designing better technologies to address epilepsy self-management. To understand the main topics and concerns of PLWE, we collected 23,945 r/Epilepsy subreddit posts and performed topic modeling, thematic analysis, and...