Christoff’s Space
Spousal caregiverFor my wife. For answers. For as long as it takes.
Welcome
Welcome to my little corner of FND Nope. I'm Christoff, the person behind FND Nope. This is where I share my thoughts, investigations, frustrations, occasional sarcasm, and whatever else catches my interest. I'm sceptical of medical dogma, allergic to unquestioned authority, and firmly believe that no diagnosis or idea should be beyond criticism. You don't have to agree with me. Good arguments and evidence are always welcome.
Public discussions and contributions, linked to their original context.
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Talking about threats, checkout this hate mail that I received:https://fndnope.org/posts?postId=87#comment-439
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Thanks, @S. F. I think there is actually quite a bit of irony in this exchange.One of the central reasons this site exists is because I am concerned about diagnostic closure around FND, the dismissal of legitimate scepticism, and the tendency for professional authority to sometimes substitute for actually demonstrati
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Started a new forum question Maddie’s FND Diagnosis: Her Mother Speaks
Initial interview with Christine Aumann, Maddie Aumann’s mother, on REAL TALK 93.3FM, discussing Maddie’s Functional Neurological Disorder (FND) diagnosis, her subsequent medical journey, and the impact the FND diagnosis had on her care.From https://www.facebook.com/RealTalk933fm/videos/1095299976492411/
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Commented on Gaslit, Misdiagnosed, Then Heard: Living With MCTD, Small Fiber Neuropathy, and Dysautonomia
Glad she finally got answers and that treatment actually helped.What bothers me is how often people in these stories have to spend half the post apologizing so they don’t offend anyone who has an FND diagnosis. You shouldn’t have to do that to say “they missed something treatable.”That reflex, protect the label first,
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Commented on Hoping one day we each will recover
Similar case shared on the FB Grouphttps://www.facebook.com/groups/1551839625936156/permalink/1741915683595215/
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Replied in ANTIBIOTICS CURED ME OF FND !
LOL, I love this quote‘That’s good that it’s all in your head, because that’s where your brain is.’
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Commented on Functional Disorders are real
Since you mentioned that you are a nurse, I would also be very interested in your perspective on a post I wrote: When Nursing Education Reinforces a Diagnosis.It looks at an Australian FND nursing education guide that explicitly encourages nurses to reinforce the diagnosis and discusses patient scepticism, pursuit of a
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Commented on Open Letter to Zachary Grin, DPT
As you have done with letters posted to you (for public record), here is the one I received.To FNDNope,I am absolutely furious about what you are doing.You present yourselves as a platform for scepticism and critical discussion around Functional Neurological Disorder, but from where I am standing, what you are actually
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Replied in Open Letter to Zachary Grin, DPT
You chose to post a lengthy response on my website, address me directly, question my honesty, and then instruct me not to respond. You do not get to enter my space, make allegations about me, and then declare that only your account may remain on the record.I never stated that the character was you. I acknowledge the re
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Replied in Other skeptical sources
A critical examination of Functional Neurological Disorder, exploring whether medication side effects and withdrawal symptoms are sometimes misclassified as psychological or “functional” neurological problems.https://rxisk.org/functional-neurological-disorder/
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Commented on Open Letter to Zachary Grin, DPT
Theoretically, we have freedom of speech on this side of the world too 😄 Although I'm not entirely convinced my country would go out of its way to defend me, they'd probably throw me under the bus if given half a chance, hehe.But there will be other battles worth fighting. For my part, I'm going to try to keep things c
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Replied in The Common Phenotypes Hypothesis
You’re right that this argument is applied unevenly mostly to conditions historically called psychogenic and mainly affecting women.I was surprised when I first delved into the literature how nebulous things were not at all like the hard sciences we are used to. Medicine balances known evidence against unknowns with pr