Christoff’s Space
Spousal caregiverFor my wife. For answers. For as long as it takes.
Welcome
Welcome to my little corner of FND Nope. I'm Christoff, the person behind FND Nope. This is where I share my thoughts, investigations, frustrations, occasional sarcasm, and whatever else catches my interest. I'm sceptical of medical dogma, allergic to unquestioned authority, and firmly believe that no diagnosis or idea should be beyond criticism. You don't have to agree with me. Good arguments and evidence are always welcome.
Public discussions and contributions, linked to their original context.
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Commented on It was Menieres
Thank you for sharing. This might help someone in the future. FND is the modern descendant of hysteria, so it is hardly surprising that the same diagnostic overshadowing persists. Ménière’s was one of the physical diseases whose symptoms could historically disappear into the broad category of “hysteria.” Today, vertigo
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Commented on It was Menieres
I’m glad you trusted your instincts and found a specialist who looked further. It is concerning that FND was suggested while a physical explanation remained unresolved, especially since your symptoms disappeared after vestibular nerve section. If you don’t mind sharing, how long have you been symptom-free since the sur
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What always boggles my mind is how quickly skepticism about the FND label, especially in cases like this one, gets framed as denial or something harmful. Skepticism is not denial of the symptoms or the suffering. It is a legitimate response when the patient themselves says they don't understand how the diagnosis was re
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Yeah, that's the first website most patients diagnosed with FND are directed to, along with https://neurosymptoms.orgIt is very strange, isn't it?
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Replied in Weirdest Things People Blame on FND
One thing I find concerning is how quickly everyone seems to accept this as "just another FND symptom." Has patients become so accustomed to attributing every new or unusual symptom to FND that the possibility of another diagnosis is no longer seriously considered? Sleeping 20–22 hours a day for five days and taking th
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@Copper Comet of Lagoon Just out of interest (I'm not sure what your background is, cons of anonymous comments), based on your comment, am I right in thinking that you consider the CSF leak to have been incidental and the surgery unnecessary? That doesn't appear to be the interpretation of the authors.If so, and assu
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@Copper Comet of Lagoon Your comment inadvertently illustrates exactly the point of the post. Even though the patient had remained symptom free for up to three months after the CSF leak was repaired, you preserve the FND diagnosis through explanations like functional overlay, comorbidity, placebo, attention, predicti
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Started a new forum question A Dangerous Message Around Your Neck
You can literally go onto https://fndconnect.org.uk/shop/product/fnd-connect-i-have-seizures-lanyard-and-cardAnd for £ 4.99 you can buy yourself a lanyard to inform bystanders to effectively discourage appropriate emergency care.Someone may assume every episode is "just another functional seizure." But seizures can cha
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Replied in Other skeptical sources
It is quite odd, there is often a "code of silence" it seems https://www.peoplespharmacy.com/articles/medicines-code-of-silence-about-mistakesBut that said, offline most of our clinicians that we're working with is very skeptical, but none of them will speak out about it on a public forum, it is a pity, since it paints
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Replied in Weirdest Things People Blame on FND
This is quite an odd story:Initially, Jade Almond was diagnosed with an unspecified brain disorder. After months of rehabilitation, she regained the ability to run. However, she was then involved in a car accident and suffered another head injury, which set her back to square one. She had to relearn how to walk and run
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Replied in Weirdest Things People Blame on FND
Skin rashes attributed to FND, really?
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Replied in Weirdest Things People Blame on FND
One striking case I came across recently was a parent who corrected their daughter's vitamin and nutritional deficiencies, resulting in complete remission of her FND symptoms. If supplements resolved her FND, why do we continue to call it FND? If nutritional deficiencies can trigger FND and we still call it FND, this r