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Questioning FND. Challenging dogma. Putting patients first.

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Welcome to FND Nope's official space. This is where we share updates, investigations, research, and reflections on Functional Neurological Disorder, with a particular focus on diagnostic practices, medical dogma, patient safety, and accountability. We question assumptions, challenge established narratives, and believe no diagnosis should be beyond scrutiny. You don't have to agree with us. In fact, we welcome opposing perspectives. What matters is evidence, open discussion, and the willingness to ask difficult questions.

Public discussions and contributions, linked to their original context.

3 months ago
Replied in Purely cognitive symptoms, no weakness, seizures etc.

In reply to: Sorry to hear you are going through this. It can be a very scary and overwhelming experience. This does sound like a mix of FND and possibly comorbid anxiety/depression, which can all impact cognitive

I think there may be a misunderstanding of what is being discussed.Nobody is saying that FCD/FND does not exist or is impossible.Seeking clarification or a second opinion is not FND denial; it is good clinical practice, particularly when someone develops sudden, life-changing cognitive symptoms.The question is whether
3 months ago
Replied in Weirdest Things People Blame on FND

In reply to: You say changing eye colour, speaking strange languages and poltergeist activity as a joke, but I have had ptosis, randomly dilating pupils, difficulties with language, repeating random words and phra

Same thing we're seeing on our side. Everything is being attributed to the diagnosis without proper investigation. That's a recipe for disaster. Even the criteria outlined in the DSM-5 are being ignored completely in favour of preserving the diagnosis.
3 months ago
Commented on Purely cognitive symptoms, no weakness, seizures etc.

https://my.clevelandclinic.org/departments/neurological/depts/multiple-sclerosis/ms-approaches/adult-onset-anti-nmda-receptor-encephalitis
3 months ago
Replied in Purely cognitive symptoms, no weakness, seizures etc.

In reply to: I haven’t sought a second opinion. I have looked into this but all roads seem to come back to the same clinic. Going private looks expensive. There is a clinic in Dublin but getting there would be a c

Did the clinicians provide you with a treatment plan? Or with any steps forward?Or was this a hit and run diagnosis?
3 months ago
Replied in Purely cognitive symptoms, no weakness, seizures etc.

In reply to: I would get someone to help you look at the latest research into brain fog and cognitive difficulties, especially microclots research in Germany & South Africa. Also , watch youtubes by Dr Binit

Thank you for this, will definitely check Dr Binita Kane out.Another angle around Long Covid is that there seems to be a gut microbiome connection?(As it is with Multiple Sclerosis and Parkinson's)Research shows that many people with Long COVID have persistent dysbiosis lower, diversity in gut bacteria and a loss of be
3 months ago
Replied in Purely cognitive symptoms, no weakness, seizures etc.

In reply to: You could do a nasa lean test (https://batemanhornecenter.org/wp-content/uploads/2016/09/NASA-Lean-Test-Instructions-1.pdf) to check for POTS, which is a possible cause of the symptoms you describe. T

Definitely worth an investigation @jakovmrc
3 months ago
Replied in Purely cognitive symptoms, no weakness, seizures etc.

In reply to: I’m not exactly sure how to reply to the comments on my post, so I hope this comment can be seen by everyone. Forgive me if this is wrong.Firstly, I came across a book called “The New Normal. The stru

Hi @Con Bradley , I merged your anonymous accounts, so all good 🙂Generally, Functional Neurological Disorder (FND), when clinicians follow the rules and guidelines, is supposed to be diagnosed on the basis of positive signs rather than by exclusion. It is not meant to be a "nothing else fits" diagnosis. Unfortunately
3 months ago
Commented on Purely cognitive symptoms, no weakness, seizures etc.

Thank you for sharing your story. I'm really sorry you've been through this. We understand how frightening and life changing cognitive symptoms can be because we've experienced similar challenges ourselves. The way you describe losing abilities that once came naturally is something many people can relate to, and it sou
3 months ago
Started a new forum question Has FND Advocacy Lost Its Soul?

Whenever I read an FND advocacy page, I like to go back in time using the Internet Archive to see how the narrative has evolved. Comparing older versions with current ones often reveals not just changes in wording, but shifts in priorities and values.Original page: http://web.archive.org/web/20160904034822/https://www.
3 months ago
Commented on The Falsification Problem: FND Resolved After CSF Leak Repair

Useful tweets
3 months ago
Replied in The Falsification Problem: FND Resolved After CSF Leak Repair

In reply to: Useful tweets

Dr. Rebecca Ryan, BMBS (Hons), FRACP Gastroenterologist & Hepatologist Specialising in Disorders of the Gut Brain Axis info@drrebeccaryan.com.au Dr. Ryan's approach focuses on a comprehensive assessment of the entire gut brain axis, recognising that symptoms often arise through the interaction of multiple f
3 months ago
Replied in The Falsification Problem: FND Resolved After CSF Leak Repair

In reply to: I answered your question regarding what would falsify a clinical diagnosis of FND. The clinical diagnosis of FND can be falsified or weakened by evidence such as:The positive signs are absent, incorr

We can certainly discuss emerging evidence from α-synuclein seed amplification assays (SAAs) and other biomarkers, but this post is not about Parkinson's. It is an interesting side discussion though. I agree that Parkinson's remains a clinical diagnosis (Parkinson's diagnosis is also subject to clinician bias and diagn