Christoff’s Space
Spousal caregiverFor my wife. For answers. For as long as it takes.
Welcome
Welcome to my little corner of FND Nope. I'm Christoff, the person behind FND Nope. This is where I share my thoughts, investigations, frustrations, occasional sarcasm, and whatever else catches my interest. I'm sceptical of medical dogma, allergic to unquestioned authority, and firmly believe that no diagnosis or idea should be beyond criticism. You don't have to agree with me. Good arguments and evidence are always welcome.
Public discussions and contributions, linked to their original context.
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Replied in Red flagsIn reply to: Looking back, was there a symptom(s) that should have prompted doctors to investigate further before diagnosis FND?
It is really absurd.I’m currently working through the nursing guide you shared on X:https://fndaustralia.com.au/resources/FND-Learning-guide-for-nurses.pdfI should have a post up later tonight or tomorrow.What strikes me as particularly odd is that the guide leaves very little room for skepticism. At a minimum, you wou
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Started a new forum question Red flags
Looking back, was there a symptom(s) that should have prompted doctors to investigate further before diagnosis FND?
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So contractures form from severe holding of muscles in FND. Even when you "cure" the FND, it's too late. When we look at these muscles on ultrasound, they are completely damaged and fibrotic. Very different than a stroke or neurological disorder. I work with an orthopedic surgeon pic.twitter.com/R5bIln5pH8- Paul Winsto
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Your comment is quite chilling to read! Quite interesting that you mentioned "the use of sunglasses", wearing sunglasses indoors (the sunglasses sign), is something that is considered possibly indicative of FND https://pmc.ncbi.nlm.nih.gov/articles/PMC9159904/ https://www.researchgate.net/publication/5656
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@Miranda, that is basically blasphemy. When a diagnosis follows a narrative similar to the faith-healing mantra, it raises serious red flags for anyone paying attention.
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Commented on Living in France, stuck in the FND Trap
@Lymewearier I find it quite ironic that you’re bringing up the faith aspect here. I've been working on an article over the past week about this very parallel I've been noticing from day one. There's a very clear similarity between how faith healers operate and how this diagnosis is often presented a
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Commented on Who am I? Why am I doing this?
No, none of this is COVID-related. My wife started deteriorating slowly many years before the pandemic.
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Commented on Living in France, stuck in the FND Trap
Thank you for taking the time to respond. Firstly, can we agree that communication to Miranda was clearly lacking and poorly delivered? That seems evident from her account. I fully understand the modern definition of FND as a rule-in diagnosis based on positive signs per DSM-5. However, in practice and even in th
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Commented on Living in France, stuck in the FND Trap
It is particularly concerning that, rather than directly addressing Miranda's specific concerns and the red flags she highlighted (omitted symptoms in the notes, the ignored positive Hoffmann's sign, the family history of autoimmune disease, and the explicit refusal to pursue autoimmune workup), you chose to frame her
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Commented on Living in France, stuck in the FND Trap
Thank you for sharing this, Miranda. I’m really sorry you’re going through something this intense and frightening, especially with symptoms that are so severe, changing, and affecting so many parts of your daily life. It sounds incredibly distressing to be dealing with such significant, debilitating illness while also
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Thank you for taking the time to write this post. I appreciate the effort you’ve put into going through the literature and laying everything out clearly. You almost get to a point where you would rather withhold data or notes since that can feel like bait that invites bias on the part of the clinician. In our contex
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Commented on Fatigable Weakness vs Functional Weakness: Why Hoover’s Sign Can Mislead When Isokinetic Testing Shows Otherwise
"Did the patient in this scenario have a positive Hoover’s sign or not?" - No The article made it clear from the description itself that Hoover’s sign was not positive. The patient had preserved initial low-demand strength, with fatigability only appearing under higher demand. The isokinetic data supported