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Christoff’s Space

Spousal caregiver

For my wife. For answers. For as long as it takes.

Welcome

Welcome to my little corner of FND Nope. I'm Christoff, the person behind FND Nope. This is where I share my thoughts, investigations, frustrations, occasional sarcasm, and whatever else catches my interest. I'm sceptical of medical dogma, allergic to unquestioned authority, and firmly believe that no diagnosis or idea should be beyond criticism. You don't have to agree with me. Good arguments and evidence are always welcome.

Public discussions and contributions, linked to their original context.

  • With respect, can we avoid medical clericalism here? The blog post clearly framed fatigable weakness from the start. It also explicitly states that the initial output of both legs looked normal at low demand. This means we are clearly not dealing with a positive Hoover sign. That is the whole point of the post.

  • Thank you Kenneth, that means a lot! Appreciate you reading it.

  • With all due respect, I believe you may be misreading the case details or missing the nuance. The article never described initial weakness in the affected leg. It emphasised the opposite: preserved initial strength with clear fatigability under sustained or higher demand efforts. Hoover’s sign is a low demand test t

  • Do you have any self-awareness at all? I've consistently been open to dialogue, but that's not what I'm receiving from you. From the outset, you engaged in personal attacks, demonstrated no willingness to listen, and consistently overstated your points while making fundamental errors (see). I believ

  • Thank you for your feedback. May I ask about your background? From what neurosurgeons have explained to me, dynamic spinal compression, for example lumbar spinal stenosis, can cause nerve signals to vary depending on posture or strain. As a result, a person may struggle to push a leg down voluntarily, but when

  • Thank you for the feedback. I will update that part of the post to include sources when I get a chance and will ping you once I’ve done so. Even in its modern context, hysteria>CD>FND is still sometimes confused with these illnesses. It is understandable, though. When it comes to the CNS, disorders tend to pre

  • At no point have I misrepresented myself on this website. I have clearly stated who I am and my limitations. I am not diagnosing anyone in this post or in any other post on this website, because, as I have been transparent about, I am not qualified to do so. I share opinions mostly supported by sources and firsthand ac

  • Hi Anonymous Thank you for your feedback. Although it is quite negative (and, to be blunt, somewhat insulting), it does give the reader valuable insight into the attitude that those who are skeptical of a diagnosis like this often seem to "enjoy." This sounds like you wrote this or it's a fabricated story by someo

  • That is true, unfortunately if you’re battling debilitating symptoms and don’t have someone fighting in your corner, you’re forced to navigate a complex, dismissive system while already impaired. When your cognition, balance, or energy are compromised, you can’t advocate effectively, and that’s when you become a lamb t

  • Thank you for this, I will definitely have a closer look at your notes. My current working hypothesis is around Dynamic spinal compression. We're in the process of talking to a doctor that has the facilities to perform a dynamic MRI. Her symptoms tend to get worse as the day progresses, and some of her symptom

  • Lyme disease and Bartonella are both valid differential diagnoses for FND. We have pursued both in the past and completed a number of workups. I found it rather odd that our neurologists did not even consider Bartonella, especially given that we mentioned we have eleven cats, which is clearly relevant in that contex

  • Hysteria is something they understandably want to distance themselves from. However, as with hysteria, its modern FND label is still used in much the same way, and even conditions that were previously bagged and tagged under that label continue to persist to this day. The reality is that diagnosis is not always as easy