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Christoff’s Space

Spousal caregiver

For my wife. For answers. For as long as it takes.

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Welcome

Welcome to my little corner of FND Nope. I'm Christoff, the person behind FND Nope. This is where I share my thoughts, investigations, frustrations, occasional sarcasm, and whatever else catches my interest. I'm sceptical of medical dogma, allergic to unquestioned authority, and firmly believe that no diagnosis or idea should be beyond criticism. You don't have to agree with me. Good arguments and evidence are always welcome.

Public discussions and contributions, linked to their original context.

  • I doubt that anyone would have been held accountable. There is a great deal of diagnostic shielding and protection for clinicians. For example, labelling something as comorbid with another condition can easily and quickly become a defence, effectively a get out of jail free card.

  • Thank you for taking the time to leave comments and for sharing the link to the TED talk. I will have a look at it. I believe it is quite dangerous to treat a functional disorder as a primary diagnosis. It is far safer to treat unknowns as unknowns and to view these symptoms as a trigger or reflex of an underlying c

  • Your reaction to l-dopa is interesting, that might be indicative (like you mentioned) of YOPD, wrote about it over here as well Using medication as a diagnostic tool

  • I’m so sorry to hear that. Did your neurologist(s) reach a diagnostic impasse, or did they jump straight to that diagnosis? Are they planning to monitor the situation? Did they discuss a way forward? I know that, generally at this stage, they involve other specialties. Sorry for all the questions, I’m just tr

  • Thank you, I was not anticipating all the negative feedback I received online from the FND community, but it was illuminating to see how easily something can become a holy cow.

  • FND is nothing more than a philosophical framework for approaching treatment when the cause of symptoms is unknown — so while it may be well-intentioned, that’s all it really is. However, the road to hell is paved with good intentions, and this is a clear example of that. When we reach an impasse like this, we canno

  • Hi Romina, Thank you for taking the time to leave such a thoughtful comment and for suggesting additional avenues of investigation. My wife has a family history of liver cancer (and cancer in general), so her liver has always been an area of concern that we’re monitoring closely. Given that background, she may in

  • Hi Mel Thank you very much for taking the time to provide fantastic feedback! I've come across David Tuller's website, and he is doing amazing work around exposing the insanity surrounding illnesses that are actually medically unexplained at the moment of diagnosis, but treated as a concrete diagnosis