FND Nope’s Space
ModeratorQuestioning FND. Challenging dogma. Putting patients first.
Welcome
Welcome to FND Nope's official space. This is where we share updates, investigations, research, and reflections on Functional Neurological Disorder, with a particular focus on diagnostic practices, medical dogma, patient safety, and accountability. We question assumptions, challenge established narratives, and believe no diagnosis should be beyond scrutiny. You don't have to agree with us. In fact, we welcome opposing perspectives. What matters is evidence, open discussion, and the willingness to ask difficult questions.
Public discussions and contributions, linked to their original context.
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Thanks for the thoughtful comment.My point is not that this case proves the patient never had FND or that CSF leaks generally explain FND. It is about what evidence would actually count against an established FND diagnosis.That is also why I don't think the comparison with Parkinson's disease is quite equivalent. Parki
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Started a new forum question Site Improvement Ideas & Feature Requests
Hey everyoneThis site is very new and evolving quickly. What features, enhancements, or changes would you like to see?Reply under this post with your ideas!All suggestions welcome - let's build this together!
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Started a new forum question Reporting Bugs
Hey everyoneThis site is very new and evolving quickly. If you spot any bugs (broken links, formatting issues, mobile glitches, comment problems, etc.), please reply under this post.Include:Device + browserWhat happenedScreenshot if possibleThanks for helping improve it!
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Started a new forum question Weirdest Things People Blame on FND
This is the place to share the craziest "my FND did this" claims you’ve seen, hair loss, sudden allergies, psychic powers, eyes changing color, poltergeist activity, speaking unknown languages, etc.Drop the most ridiculous ones below!
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Started a new forum question Other skeptical sources
When we initially investigated FND, we were surprised to find almost no official skepticism.Dr. David Tuller, through his “Trial By Error” series on virology.ws (https://virology.ws/tag/fnd/)
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Commented on ANTIBIOTICS CURED ME OF FND !
Firstly, I am noticing a clear pattern in these anonymous comments (Anonymous neurologist is that you?). Any patient who remains skeptical of their FND label, proposes alternative explanations, or does not articulate every medical detail perfectly is automatically assumed to be in denial and therefore proof that they h
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Commented on Hoping one day we each will recover
Thank you for sharing your daughter's story. It is heartbreaking and infuriating at the same time. The gaslighting you both endured for over two years, the isolation, and the way FND became an easy label to shut down real investigation hits so close to home for so many of us here. Dr. Chopra's words "
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Commented on ANTIBIOTICS CURED ME OF FND !
Thank you for sharing this detailed and courageous account Lymewearier. Your story powerfully illustrates the real frustrations many face: dismissive neurology, over reliance on imperfect Lyme serology, and the dangers of FND becoming a catch all that halts further investigation. The symptom overlap between late
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Commented on Fatigable Weakness vs Functional Weakness: Why Hoover’s Sign Can Mislead When Isokinetic Testing Shows Otherwise
The discussion was largely unproductive, unfortunately. I don’t see much point in continuing it further. The clinician here simply echoed the same approach as his colleague in the clinical setting: dismissing the isokinetic data showing clear, reproducible fatigable weakness while assuming a functional diagnosis upf
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Commented on Fatigable Weakness vs Functional Weakness: Why Hoover’s Sign Can Mislead When Isokinetic Testing Shows Otherwise
"You are assuming functional weakness should always lead to weakness at movement initiation. That's not true though. People can and often do experience functional weakness with repeated or sustained movement" This post is not arguing against functional weakness, or even functional fatigable weakness. The c
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Just a reminder for the clinician in the comment section: FND requires positive rule-in signs. Some context about Christoff's wife: even though Hoover’s sign is mentioned here, functional rule-in signs were never found, and the FND diagnosis was made purely because a diagnostic impasse was reached. (the dynami
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I think everyone understands that we are dealing with analogies here, and the post itself even pre-empts the “it is just an analogy” criticism. However, the discussion here involves hypotheticals, and it does not take much imagination to see that the analogy can also be extended from a sceptical perspective. It i