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The Lyme Files

Welcome

Welcome to The Lyme Files, a space dedicated to examining Lyme disease, neuroborreliosis, persistent symptoms, and the consequences of missed or delayed diagnoses. We explore clinical research, patient experiences, testing limitations, and diagnostic controversies, including cases where symptoms have been attributed to FND. The aim is simple: question assumptions, follow the evidence, acknowledge uncertainty, and challenge diagnostic certainty where the science doesn't justify it. Contributions, research, personal experiences, and respectful disagreement are welcome.

18 Months of Neurological Decline, a Psychosomatic Label, and the Lyme Infection They Missed

A 54-year-old woman spent more than 18 months experiencing progressive neurological symptoms before doctors identified late Lyme neuroborreliosis and spinal cord inflammation. Her symptoms had been attributed to psychosomatic causes, despite worsening mobility, bladder and bowel dysfunction, and significant weight loss. A 2025 case report documents the diagnostic delay, the evidence that overturned the earlier assumption, and the lasting disability after treatment.

ANTIBIOTICS CURED ME OF FND !

Personal account of complex neurological and systemic symptoms following a tick bite, with a clinical diagnosis of FND made after extensive negative or inconclusive investigations. The author proposes an infectious origin involving Lyme disease and other tick-borne infections and reports improvement following targeted antibiotic treatment.

Another case of Lyme disease attributed to FND, due to negative Lyme testing

Maja Bagdziun shares her story with LDUK, after being given “a confusing FND label” because she tested negative for Lyme infection.

When Lyme Disease Symptoms Persist: What Do We Actually Know?

Lyme disease can have lasting consequences, but persistent symptoms do not necessarily mean persistent infection. We examine untreated infection, reinfection, treatment limitations, PTLDS and the difficult questions raised when patients with unresolved neurological symptoms receive an FND diagnosis. Drawing on published research, patient accounts and discussions on FND Nope, we also explore how clinical terminology can obscure rather than clarify diagnostic uncertainty.

When Hoover's Sign Suggested Conversion Disorder, but Lyme Disease Entered the Picture

A 2019 case report documents a woman whose weakness, anxiety and reported positive Hoover's sign raised suspicions of conversion disorder. Further investigations uncovered objective neurological abnormalities and evidence supporting possible Lyme neuroborreliosis.

Lyme Neuroborreliosis Dismissed as Psychosomatic: The Diagnosis Came After 17 kg of Weight Loss

A 30-year-old man with severe headaches, dizziness, exhaustion and dramatic weight loss was discharged with psychosomatic complaints after routine investigations found little wrong. Two weeks later, further testing revealed acute Lyme neuroborreliosis, a serious neurological infection that responded rapidly to antibiotics.