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Stories

Patient experiences and clinical cases relating to Functional Neurological Disorder.

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Patient stories

Personal experiences of living with an FND diagnosis.

Pinned posts

Maddie Aumann: From an FND Diagnosis to Maddie’s Law

1 month ago by FND Nope

Maddie Aumann was diagnosed with FND before genetic testing identified a rare SCN9A disorder. Her mother, Christine Aumann, describes how the FND label continued to affect Maddie’s care even after that discovery, ultimately helping inspire Maddie’s Law.

Latest posts

ANTIBIOTICS CURED ME OF FND !

5 months ago by mel

Personal account of complex neurological and systemic symptoms following a tick bite, with a clinical diagnosis of FND made after extensive negative or inconclusive investigations. The author proposes an infectious origin involving Lyme disease and other tick-borne infections and reports improvement following targeted antibiotic treatment.

Hoping one day we each will recover

5 months ago by Anonymous Parent

An 18-year-old developed severe neurological symptoms after a concussion, was diagnosed with FND after inconclusive testing, and later found to have tethered cord syndrome requiring surgery.

Living in France, stuck in the FND Trap

5 months ago by vi_toka

Miranda’s health collapsed almost overnight, progressing from difficulty walking to seizures, psychosis, and rapid neurological decline. Despite abnormal findings and worsening symptoms, she was quickly labelled with Functional Neurological Disorder, and further testing was repeatedly refused. Her story raises serious concerns about missed conditions like Autoimmune encephalitis and the risks of diagnostic overshadowing blocking proper care.

Who am I? Why am I doing this?

1 year ago by Christoff

For the past seven years, my wife’s health has steadily declined, which forced me into research mode - diving deep into various medical fields through countless hours of studying medical journals, textbooks, clinical resources, and literature, as we were passed from specialist to specialist.

Clinical cases

Real clinical cases documented in published medical case reports.

Latest posts

When “Functional” Signs Mislead: GSS Misdiagnosed as Conversion Disorder

1 month ago by FND Nope

A man whose variable, distractible and inconsistent neurological findings contributed to a diagnosis of conversion disorder continued to deteriorate for years. After his death, neuropathology and genetic testing confirmed Gerstmann-Sträussler-Scheinker syndrome, showing how genuine clinical observations can support the wrong diagnostic interpretation.

A Case Report of Headache and Weakness Diagnosed as Functional Neurological Disorder

1 month ago by FND Nope

A 26-year-old postpartum woman presenting with headache and neurological symptoms was discharged with anxiety and possible conversion disorder. She returned the following morning unable to walk. MRI revealed a thalamic infarction caused by cerebral venous thrombosis. The case also raises a broader question: if later disease does not necessarily invalidate an FND diagnosis, how is FND misdiagnosis actually identified and counted?

Case Study: FND After Spine Surgery

6 months ago by FND Nope

A critical look at a case of postoperative paralysis labelled as FND, questioning whether pre-existing neurological instability and predictive processing may better explain the presentation than a purely functional diagnosis.