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vi_toka

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1 post 2 comments 0 discussions 17 Jul 2026
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Living in France, stuck in the FND Trap
3 months ago

Miranda’s health collapsed almost overnight, progressing from difficulty walking to seizures, psychosis, and rapid neurological decline. Despite abnormal findings and worsening symptoms, she was quickly labelled with Functional Neurological Disorder, and further testing was repeatedly refused. Her story raises serious concerns about missed conditions like Autoimmune encephalitis and the risks of diagnostic overshadowing blocking proper care.

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Replied to The Common Phenotypes Hypothesis · 17 Jul 2026

Great article. I’m worried about my FND diagnosis remaining on my chart forever, even though it was made on my first appointment “due to [my] history of psychological trauma” according to my own notes, and I was denied testing so “not to reinforce the idea [that I] have a real illness”. The diagnosis will remain forever and so will the stigma. In my experience even symptoms entirely inconsistent do not trigger reassessment. There’s something seriously wrong in medicine.


I’ve been discharged altogether because I “don’t accept the diagnosis” and it was listed on my file as a “perpetuating factor”, ie I am “keeping myself” ill by not believing it. It fucks with my head massively

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