vi_toka
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17 Jul 2026
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1Patient story
Shared stories from people describing their experiences with Functional Neurological Disorder (FND), including symptoms, diagnosis journeys, and day-to-day impact.
Living in France, stuck in the FND Trap
3 months ago
Miranda’s health collapsed almost overnight, progressing from difficulty walking to seizures, psychosis, and rapid neurological decline. Despite abnormal findings and worsening symptoms, she was quickly labelled with Functional Neurological Disorder, and further testing was repeatedly refused. Her story raises serious concerns about missed conditions like Autoimmune encephalitis and the risks of diagnostic overshadowing blocking proper care.
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2I’ve been discharged altogether because I “don’t accept the diagnosis” and it was listed on my file as a “perpetuating factor”, ie I am “keeping myself” ill by not believing it. It fucks with my head massively
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Great article. I’m worried about my FND diagnosis remaining on my chart forever, even though it was made on my first appointment “due to [my] history of psychological trauma” according to my own notes, and I was denied testing so “not to reinforce the idea [that I] have a real illness”. The diagnosis will remain forever and so will the stigma. In my experience even symptoms entirely inconsistent do not trigger reassessment. There’s something seriously wrong in medicine.