She Asked if It Was Hemiplegic Migraine. Her Neurologist Diagnosed FND
Reddit Stories
Social media
A Reddit user describes recurrent episodes of one-sided paralysis that were diagnosed as FND. She says she raised hemiplegic migraine herself but it was rejected. Three years later, a headache specialist diagnosed chronic hemiplegic migraine, and she reports substantial improvement with migraine treatment.
FND Diagnosis Followed by Myasthenia Gravis and Respiratory Failure
Reddit Stories
Social media
A Reddit user questioned their FND diagnosis while being investigated for myasthenia gravis. Weeks later, they reported respiratory failure requiring intubation, an MG diagnosis and treatment with IVIG and plasma exchange. A later FND specialist assessment reportedly found no FND symptoms.
A Case Report of Headache and Weakness Diagnosed as Functional Neurological Disorder
FND Nope
Moderator
A 26-year-old postpartum woman presenting with headache and neurological symptoms was discharged with anxiety and possible conversion disorder. She returned the following morning unable to walk. MRI revealed a thalamic infarction caused by cerebral venous thrombosis. The case also raises a broader question: if later disease does not necessarily invalidate an FND diagnosis, how is FND misdiagnosis actually identified and counted?
Written Off with FND: The Hidden Dental Abscess That Changed Everything
Facebook Stories
Social media
After years of severe disability and an FND diagnosis, Sam’s family discovered a large, hidden abscess beneath a previously treated root-canal tooth. Within weeks of its removal and treatment, he began to regain his vision, mobility, clarity and independence. This is their story and a reminder that unexplained symptoms still deserve thorough investigation.
The Medical Journey of Megan Dixon: FND and Severe Disability
FND Nope
Moderator
Megan Dixon became severely disabled following childhood illness, with progressive loss of mobility and speech leading to prolonged hospitalisation. She was later reportedly diagnosed with FND and underwent extended rehabilitation after years of severe impairment.
Living in France, stuck in the FND Trap
vi_toka
Sufferer
Miranda’s health collapsed almost overnight, progressing from difficulty walking to seizures, psychosis, and rapid neurological decline. Despite abnormal findings and worsening symptoms, she was quickly labelled with Functional Neurological Disorder, and further testing was repeatedly refused. Her story raises serious concerns about missed conditions like Autoimmune encephalitis and the risks of diagnostic overshadowing blocking proper care.
Case Study: FND After Spine Surgery
FND Nope
Moderator
A critical look at a case of postoperative paralysis labelled as FND, questioning whether pre-existing neurological instability and predictive processing may better explain the presentation than a purely functional diagnosis.
Fatigable Weakness vs Functional Weakness: Why Hoover’s Sign Can Mislead When Isokinetic Testing Shows Otherwise
Christoff Trüter
Spousal caregiver
Examines Hoover's sign in a patient with true fatigable weakness. Highlights how objective isokinetic testing better captures performance deficits than traditional clinical signs, preventing misinterpretation as functional weakness.
Personal Account of Misdiagnosed Neurological Condition by a Medical Student
Anon. Kazakh Med Student
Medical student
Email from a 21-year-old medical student in Kazakhstan sharing their detailed experience with neurological symptoms diagnosed as FND, highlighting objective signs of an organic lesion, diagnostic history, and concerns about misdiagnosis.
Cervical Stenosis, Hoover’s Sign, and Clinical Blind Spots
Christoff Trüter
Spousal caregiver
In Functional Neurological Disorder (FND), standard brain imaging (e.g. MRI, CT) usually appears normal, showing no structural damage, lesions, tumours, or other typical neurological signs, except when FND is comorbid with an organically confirmed neurological condition, such as multiple sclerosis, stroke, or epilepsy (like saying pain occurs alongside a bone fracture).
