State Rep. Tricia Byrnes Is Looking for the Filmmaker Who’ll Investigate FND
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Missouri State Rep. Tricia Byrnes is seeking a filmmaker to investigate Functional Neurological Disorder. She says hundreds of families report children were labeled with FND before doctors fully checked seizures and loss of mobility, and that second opinions were blocked.
When Stress-Sensitive Stiffness Was Diagnosed as Conversion Disorder
FND Nope
Moderator
A 52-year-old woman developed progressive leg stiffness, spasms and severe gait impairment that worsened with stress and fatigue. After multiple evaluations, she was diagnosed with conversion disorder. A year later, markedly elevated anti-GAD antibodies and characteristic EMG abnormalities supported stiff-person syndrome, with significant improvement following IVIG.
When “Functional” Signs Mislead: GSS Misdiagnosed as Conversion Disorder
FND Nope
Moderator
A man whose variable, distractible and inconsistent neurological findings contributed to a diagnosis of conversion disorder continued to deteriorate for years. After his death, neuropathology and genetic testing confirmed Gerstmann-Sträussler-Scheinker syndrome, showing how genuine clinical observations can support the wrong diagnostic interpretation.
A Case Report of Headache and Weakness Diagnosed as Functional Neurological Disorder
FND Nope
Moderator
A 26-year-old postpartum woman presenting with headache and neurological symptoms was discharged with anxiety and possible conversion disorder. She returned the following morning unable to walk. MRI revealed a thalamic infarction caused by cerebral venous thrombosis. The case also raises a broader question: if later disease does not necessarily invalidate an FND diagnosis, how is FND misdiagnosis actually identified and counted?
Written Off with FND: The Hidden Dental Abscess That Changed Everything
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After years of severe disability and an FND diagnosis, Sam’s family discovered a large, hidden abscess beneath a previously treated root-canal tooth. Within weeks of its removal and treatment, he began to regain his vision, mobility, clarity and independence. This is their story and a reminder that unexplained symptoms still deserve thorough investigation.
The Medical Journey of Megan Dixon: FND and Severe Disability
FND Nope
Moderator
Megan Dixon became severely disabled following childhood illness, with progressive loss of mobility and speech leading to prolonged hospitalisation. She was later reportedly diagnosed with FND and underwent extended rehabilitation after years of severe impairment.
Living in France, stuck in the FND Trap
vi_toka
Sufferer
Miranda’s health collapsed almost overnight, progressing from difficulty walking to seizures, psychosis, and rapid neurological decline. Despite abnormal findings and worsening symptoms, she was quickly labelled with Functional Neurological Disorder, and further testing was repeatedly refused. Her story raises serious concerns about missed conditions like Autoimmune encephalitis and the risks of diagnostic overshadowing blocking proper care.
Personal Account of Misdiagnosed Neurological Condition by a Medical Student
Anon. Kazakh Med Student
Medical student
Email from a 21-year-old medical student in Kazakhstan sharing their detailed experience with neurological symptoms diagnosed as FND, highlighting objective signs of an organic lesion, diagnostic history, and concerns about misdiagnosis.
