Patient experiences and clinical cases relating to Functional Neurological Disorder.
Personal experiences of living with an FND diagnosis.
Maddie Aumann was diagnosed with FND before genetic testing identified a rare SCN9A disorder. Her mother, Christine Aumann, describes how the FND label continued to affect Maddie’s care even after that discovery, ultimately helping inspire Maddie’s Law.
A Daily Mail article about Jo Puckett's experience with FND raises questions about diagnostic certainty, psychological distress, medical dismissal and the difference between wanting answers and wanting to remain ill.
I would like to share my daughter’s story and what Functional Neurological Disorder has done to her life over the past three years.Before FND, my daughter was a creative, talented teenager who loved music, performing, makeup and hair. She had dreams for
A Reddit user describes recurrent episodes of one-sided paralysis that were diagnosed as FND. She says she raised hemiplegic migraine herself but it was rejected. Three years later, a headache specialist diagnosed chronic hemiplegic migraine, and she reports substantial improvement with migraine treatment.
A Reddit user questioned their FND diagnosis while being investigated for myasthenia gravis. Weeks later, they reported respiratory failure requiring intubation, an MG diagnosis and treatment with IVIG and plasma exchange. A later FND specialist assessment reportedly found no FND symptoms.
I was diagnosed with FND 2 years ago, with symptoms first appearing 3-4 years ago. I am a female in my 20s. Here are a few things I wish I knew when I first got diagnosed (these are all just my opinions based on my experience, they are not facts)clinician
A reader shared this account from a woman misdiagnosed with FND who later learned she had mixed connective tissue disease (now lupus), small fiber neuropathy, and dysautonomia. She writes about autoimmune effects on the nervous system, getting a second opinion, and finding doctors who listen.
A young woman with lupus and Sjögren’s was diagnosed with FND without an EEG, spinal tap, or extensive laboratory testing. Further investigation at another hospital revealed a previous stroke and autoimmune abnormalities, leading to a diagnosis of CNS lupus.
A 38-year-old patient diagnosed with FND after limited testing was later found to have three treatable heart conditions that explained their symptoms, including extreme daily heart-rate fluctuations previously dismissed as anxiety.
An ENT doctor suggested I had Menieres (an illness that attacks the balance nerve and the ear) in 2023. He wasn't sure as he said the disease is rare and my hearing loss was in the wrong frequency. He said there is no cure and I would have to wait for bur
I was diagnosed with FND. Saw a neurologist and he said you must stop taking Keppra as it causes depression and anxiety and start on an alternative anti-seizure drug. I left with a step down plan and guess what, the depression and anxiety has gone.
After years of severe disability and an FND diagnosis, Sam’s family discovered a large, hidden abscess beneath a previously treated root-canal tooth. Within weeks of its removal and treatment, he began to regain his vision, mobility, clarity and independence. This is their story and a reminder that unexplained symptoms still deserve thorough investigation.
One day out of the blue I felt incredibly anxious and depressed. I can identify the time of day this happened. I couldn’t sleep but got sleeping tablets from my GP. The feelings continued for a few days but then I had a series of vacant seizures.
Real clinical cases documented in published medical case reports.
A 54-year-old woman spent more than 18 months experiencing progressive neurological symptoms before doctors identified late Lyme neuroborreliosis and spinal cord inflammation. Her symptoms had been attributed to psychosomatic causes, despite worsening mobility, bladder and bowel dysfunction, and significant weight loss. A 2025 case report documents the diagnostic delay, the evidence that overturned the earlier assumption, and the lasting disability after treatment.
A 30-year-old man with severe headaches, dizziness, exhaustion and dramatic weight loss was discharged with psychosomatic complaints after routine investigations found little wrong. Two weeks later, further testing revealed acute Lyme neuroborreliosis, a serious neurological infection that responded rapidly to antibiotics.
A 2019 case report documents a woman whose weakness, anxiety and reported positive Hoover's sign raised suspicions of conversion disorder. Further investigations uncovered objective neurological abnormalities and evidence supporting possible Lyme neuroborreliosis.
A reader highlights how children and adults with periodic paralysis, a recognised neuromuscular channelopathy, can be labelled with FND or anxiety instead. Medical literature confirms the diagnostic risk, including cases where appropriate testing identified a treatable disorder.
A 2025 case series documents two young women whose involuntary movements were attributed to functional neurological disorder before testing confirmed POTS. One was later diagnosed with FND again after developing paralysis, only for further investigation to reveal hypokalemic periodic paralysis.
A 19-year-old woman with anxiety, trembling legs and balance problems was diagnosed with conversion disorder. Further testing revealed rare autoimmune encephalitis. Following immunotherapy, she recovered completely. Her case raises serious questions about premature psychiatric diagnoses and overlooked neurological disease.
A patient spent years with neurological symptoms, repeated falls and fractures while doctors attributed his condition to FND and other functional diagnoses. New genetic testing eventually identified SCA27B. A published three-patient case series exposes the dangers of negative investigations, diagnostic confirmation bias and assuming neurological presentations must fit existing expectations.
A woman in her 40s was treated for functional neurological disorder and psychogenic non-epileptic seizures after a family bereavement. Her worsening symptoms were eventually traced to anti-LGI1 autoimmune encephalitis, a treatable neurological disease confirmed through MRI and antibody testing.
A September 2026 study examined 17 patients diagnosed with psychogenic non-epileptic seizures. All had abnormal orthostatic findings, and 10 of 14 patients receiving medication improved after treatment for autonomic dysfunction. Some had visited emergency departments up to seven times before further neurological assessment. The findings raise serious questions about premature PNES diagnoses and missed physiological causes of seizure-like movements.
A 43-year-old woman became unable to stand during a COVID-19 infection. Doctors diagnosed FND and cancelled her scheduled tilt-table test. Twelve days later, testing revealed her blood pressure collapsing to 66/52 mmHg. Further investigations identified evidence of immune-mediated autonomic dysfunction, and she eventually recovered following treatment.
A 47-year-old woman’s progressive neurological deterioration was attributed to conversion disorder after her son’s suicide. Despite abnormal findings and failed psychiatric treatments, the diagnosis persisted. Genetic testing eventually confirmed frontotemporal dementia. Her doctors later acknowledged the cognitive biases behind their diagnostic failure.
A woman with progressive neurological symptoms and documented FLVCR1 variants repeatedly had her symptoms considered functional. A 2026 case report exposes a failure to connect neurological findings with an existing genetic disorder.