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8 posts 0 comments 0 discussions Member since 13 Sep 2026
Sharing real patient stories and experiences involving Functional Neurological Disorder (FND) including diagnosis, misdiagnosis, uncertainty, recovery, and diagnoses discovered later. Stories are shared to encourage open discussion, critical enquiry, and better understanding of the patient experience.
Stance towards FND
Neutral or undecided
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8
Four Years Diagnosed With FND Before a DaTscan and Parkinson's Diagnosis
3 weeks ago

A Reddit user reports spending four years diagnosed with FND before receiving a Parkinson's disease diagnosis following a DaTscan. They say appropriate medication improved their condition, raising questions about the original diagnosis and the consequences of delayed investigation.

Two Years Diagnosed With FND Before Autoimmune and Genetic Findings Emerged
4 weeks ago

A Reddit user reports spending two years diagnosed with FND and anxiety before investigations reportedly identified autoimmune and genetic neurological conditions. Their experience raises questions about overlapping symptoms, diagnostic closure, and why complex presentations may be interpreted as functional.

FND Diagnosis Reversed: Autoimmune Basal Ganglia Encephalitis
1 month ago

A patient diagnosed with FND reports that a second opinion revealed autoimmune basal ganglia encephalitis. Their account raises questions about incomplete investigations, overlooked neurological findings and whether an unexplained illness was prematurely labelled functional.

She Asked if It Was Hemiplegic Migraine. Her Neurologist Diagnosed FND
1 month ago

A Reddit user describes recurrent episodes of one-sided paralysis that were diagnosed as FND. She says she raised hemiplegic migraine herself but it was rejected. Three years later, a headache specialist diagnosed chronic hemiplegic migraine, and she reports substantial improvement with migraine treatment.

FND Diagnosis Followed by Myasthenia Gravis and Respiratory Failure
1 month ago

A Reddit user questioned their FND diagnosis while being investigated for myasthenia gravis. Weeks later, they reported respiratory failure requiring intubation, an MG diagnosis and treatment with IVIG and plasma exchange. A later FND specialist assessment reportedly found no FND symptoms.

Misdiagnosed With FND: From Inpatient Rehabilitation to Neurosarcoidosis
1 month ago

A Reddit user documented severe neurological symptoms, an FND diagnosis and inpatient rehabilitation before further investigation reportedly revealed neurosarcoidosis. The patient later said their neurosurgeon found that the original hospital MRI already contained findings relevant to the eventual diagnosis.

FND Diagnosis Followed by Multiple System Atrophy
1 month ago

A Reddit user describes rapidly progressive neurological and autonomic symptoms that were diagnosed as FND despite their concerns that something else was wrong. Six months after publicly questioning the diagnosis and specifically raising MSA as a possibility, they updated their story to report that further investigation had resulted in a diagnosis of multiple system atrophy (MSA), by which point they were completely bedridden.

FND Diagnosis Followed by ALS and Metastatic Cancer
1 month ago

A Reddit user documents a two-year journey in which progressive neurological symptoms were attributed to FND before they later reported receiving an ALS diagnosis, followed by the discovery of metastatic bladder cancer.

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