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Member since 13 Sep 2026
Sharing real patient stories and experiences involving Functional Neurological Disorder (FND) including diagnosis, misdiagnosis, uncertainty, recovery, and diagnoses discovered later.
Stories are shared to encourage open discussion, critical enquiry, and better understanding of the patient experience.
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1Doctor Encounters
Recounting direct experiences with doctors, their approaches, red flags, and practical takeaways from navigating complex chronic conditions.
FND Diagnosis Reversed: Autoimmune Basal Ganglia Encephalitis
1 month ago
A patient diagnosed with FND reports that a second opinion revealed autoimmune basal ganglia encephalitis. Their account raises questions about incomplete investigations, overlooked neurological findings and whether an unexplained illness was prematurely labelled functional.
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