Doctor Encounters
Recounting direct experiences with doctors, their approaches, red flags, and practical takeaways from navigating complex chronic conditions.
Another case of Lyme disease attributed to FND, due to negative Lyme testing
mel
Convalescent
Maja Bagdziun shares her story with LDUK, after being given “a confusing FND label” because she tested negative for Lyme infection.
Diagnosed With FND After Losing Her Daughter. Years Later, Elly Had 15 Brain Lesions and Multiple Sclerosis
FND Nope
Moderator
Elly Littlejohn was diagnosed with FND after losing her daughter to a drunk driver, despite abnormal MRI findings. Years of worsening symptoms, additional brain lesions and abnormal spinal fluid results eventually led to an MS diagnosis. Her story raises serious questions about diagnostic anchoring, trauma-based assumptions and delayed treatment.
From PNES and Suspected FND to C1 Paralysis: Amy Wang-Hiller's Story
Facebook Stories
Social media
Violinist Amy Wang-Hiller describes how suspected FND, a PNES diagnosis and repeated psychological attribution allegedly delayed recognition of tethered spinal cord, cervical instability and progressive paralysis.
FND Diagnosis Reversed: Autoimmune Basal Ganglia Encephalitis
Reddit Stories
Social media
A patient diagnosed with FND reports that a second opinion revealed autoimmune basal ganglia encephalitis. Their account raises questions about incomplete investigations, overlooked neurological findings and whether an unexplained illness was prematurely labelled functional.
Open Letter to Zachary Grin, DPT
Christoff
Spousal caregiver
An open letter addressing the removal of a disputed cartoon, clarifying what was—and was not—claimed, and reaffirming FND Nope’s commitment to open and critical discussion of the FND framework.
A Tale of Four Neurologists
Christoff
Spousal caregiver
Over the years, navigating my wife's extremely complex medical journey, we have met a lot of doctors along the way: some great, some mediocre, and some negligent. Looking back retrospectively, there are a lot of things I wish we had done differently.
