State Rep. Tricia Byrnes Is Looking for the Filmmaker Who’ll Investigate FND
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Missouri State Rep. Tricia Byrnes is seeking a filmmaker to investigate Functional Neurological Disorder. She says hundreds of families report children were labeled with FND before doctors fully checked seizures and loss of mobility, and that second opinions were blocked.
She Asked if It Was Hemiplegic Migraine. Her Neurologist Diagnosed FND
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A Reddit user describes recurrent episodes of one-sided paralysis that were diagnosed as FND. She says she raised hemiplegic migraine herself but it was rejected. Three years later, a headache specialist diagnosed chronic hemiplegic migraine, and she reports substantial improvement with migraine treatment.
Janet Dafoe on FND: "Where the Sun Don’t Shine"
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ME/CFS advocate and psychologist Janet Dafoe has criticised psychosomatic explanations of poorly understood illness for years. In 2026, that criticism turned directly to FND, raising questions about diagnostic certainty, ME/CFS, Long COVID and what happens when uncertainty becomes a diagnosis.
FND Diagnosis Followed by Myasthenia Gravis and Respiratory Failure
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A Reddit user questioned their FND diagnosis while being investigated for myasthenia gravis. Weeks later, they reported respiratory failure requiring intubation, an MG diagnosis and treatment with IVIG and plasma exchange. A later FND specialist assessment reportedly found no FND symptoms.
Misdiagnosed With FND: From Inpatient Rehabilitation to Neurosarcoidosis
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A Reddit user documented severe neurological symptoms, an FND diagnosis and inpatient rehabilitation before further investigation reportedly revealed neurosarcoidosis. The patient later said their neurosurgeon found that the original hospital MRI already contained findings relevant to the eventual diagnosis.
FND Diagnosis Followed by Multiple System Atrophy
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A Reddit user describes rapidly progressive neurological and autonomic symptoms that were diagnosed as FND despite their concerns that something else was wrong. Six months after publicly questioning the diagnosis and specifically raising MSA as a possibility, they updated their story to report that further investigation had resulted in a diagnosis of multiple system atrophy (MSA), by which point they were completely bedridden.
FND Diagnosis Followed by ALS and Metastatic Cancer
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A Reddit user documents a two-year journey in which progressive neurological symptoms were attributed to FND before they later reported receiving an ALS diagnosis, followed by the discovery of metastatic bladder cancer.
When Something Doesn’t Add Up: The MRI That Finally Gave Me Another Lead
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After years of worsening symptoms, repeated A&E visits and an FND diagnosis that never fully seemed to fit, a long-awaited MRI finally revealed cervical spine abnormalities that now require further investigation. This is a patient story about persistence, uncertainty and the importance of taking another look when something does not add up.
Gaslit, Misdiagnosed, Then Heard: Living With MCTD, Small Fiber Neuropathy, and Dysautonomia
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A reader shared this account from a woman misdiagnosed with FND who later learned she had mixed connective tissue disease (now lupus), small fiber neuropathy, and dysautonomia. She writes about autoimmune effects on the nervous system, getting a second opinion, and finding doctors who listen.
Diagnosed with CNS lupus after initial FND diagnosis
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A young woman with lupus and Sjögren’s was diagnosed with FND without an EEG, spinal tap, or extensive laboratory testing. Further investigation at another hospital revealed a previous stroke and autoimmune abnormalities, leading to a diagnosis of CNS lupus.
Three Heart Conditions Misdiagnosed as FND
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A 38-year-old patient diagnosed with FND after limited testing was later found to have three treatable heart conditions that explained their symptoms, including extreme daily heart-rate fluctuations previously dismissed as anxiety.
