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Member since 14 Aug 2026
Sharing Facebook stories and personal experiences from people diagnosed with FND, amplifying patient voices, raising awareness, and highlighting the realities behind the diagnosis.
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Posts where patients, families, or caregivers are actively seeking information, similar experiences, specialist suggestions, or leads after reaching a diagnostic dead end.
Harper’s Story: Exercise-Triggered Episodes, Abnormal EEG Findings, Then FND/PNES
2 weeks ago
An 11-year-old developed recurrent episodes of collapse, prolonged unresponsiveness, abnormal movements and post-event neurological symptoms, often after exercise or heat. Multiple EEGs failed to capture a typical episode, while two showed epileptiform abnormalities. Her episodes were eventually labelled FND/PNES. Her family is looking for others whose children followed a similar path.
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