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Member since 11 Oct 2026
Sharing Instagram stories, Reels, and personal experiences from people diagnosed with FND, amplifying patient voices, questioning diagnostic certainty, challenging medical narratives, and exposing the realities and consequences of an FND diagnosis.
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Posts where patients, families, or caregivers are actively seeking information, similar experiences, specialist suggestions, or leads after reaching a diagnostic dead end.
Two Years With an FND Diagnosis. Then the Specialists Said He Didn't Have It.
6 days ago
Jonathan Andrews spent years unable to walk, struggling to access rehabilitation, and questioning his FND diagnosis. After a two-and-a-half-hour assessment at Toronto Rehab, specialists reportedly told him they didn't believe he had FND. His story raises serious questions about diagnostic accountability, rehabilitation access, and the damage caused when clinical uncertainty is treated as certainty.
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