The Lyme Files

An ongoing collection examining Lyme disease, neuroborreliosis, persistent symptoms, diagnostic uncertainty and the consequences of missed or delayed diagnoses. From patient experiences and clinical research to testing limitations and cases attributed to FND, The Lyme Files explores what the evidence establishes, what remains disputed and what happens when medical uncertainty is mistaken for diagnostic certainty.

Posts

When Lyme Disease Symptoms Persist: What Do We Actually Know?

2 hours ago

FND Nope Moderator

Lyme disease can have lasting consequences, but persistent symptoms do not necessarily mean persistent infection. We examine untreated infection, reinfection, treatment limitations, PTLDS and the difficult questions raised when patients with unresolved neurological symptoms receive an FND diagnosis. Drawing on published research, patient accounts and discussions on FND Nope, we also explore how clinical terminology can obscure rather than clarify diagnostic uncertainty.

Another case of Lyme disease attributed to FND, due to negative Lyme testing

1 week ago

mel Convalescent

Maja Bagdziun shares her story with LDUK, after being given “a confusing FND label” because she tested negative for Lyme infection.

ANTIBIOTICS CURED ME OF FND !

4 months ago

mel Convalescent

Personal account of complex neurological and systemic symptoms following a tick bite, with a clinical diagnosis of FND made after extensive negative or inconclusive investigations. The author proposes an infectious origin involving Lyme disease and other tick-borne infections and reports improvement following targeted antibiotic treatment.