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3 posts 0 comments 0 discussions Member since 13 Sep 2026
Sharing real patient stories and experiences involving Functional Neurological Disorder (FND) including diagnosis, misdiagnosis, uncertainty, recovery, and diagnoses discovered later. Stories are shared to encourage open discussion, critical enquiry, and better understanding of the patient experience.
Stance towards FND
Neutral or undecided
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Differential
A differential diagnosis is a list of other possible causes of the symptoms that are considered before deciding on the most likely one.
Four Years Diagnosed With FND Before a DaTscan and Parkinson's Diagnosis
3 weeks ago

A Reddit user reports spending four years diagnosed with FND before receiving a Parkinson's disease diagnosis following a DaTscan. They say appropriate medication improved their condition, raising questions about the original diagnosis and the consequences of delayed investigation.

Two Years Diagnosed With FND Before Autoimmune and Genetic Findings Emerged
4 weeks ago

A Reddit user reports spending two years diagnosed with FND and anxiety before investigations reportedly identified autoimmune and genetic neurological conditions. Their experience raises questions about overlapping symptoms, diagnostic closure, and why complex presentations may be interpreted as functional.

FND Diagnosis Reversed: Autoimmune Basal Ganglia Encephalitis
1 month ago

A patient diagnosed with FND reports that a second opinion revealed autoimmune basal ganglia encephalitis. Their account raises questions about incomplete investigations, overlooked neurological findings and whether an unexplained illness was prematurely labelled functional.

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