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1 post 0 comments 0 discussions Member since 14 Aug 2026
Sharing Facebook stories and personal experiences from people diagnosed with FND, amplifying patient voices, raising awareness, and highlighting the realities behind the diagnosis.
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Doctor Encounters
Recounting direct experiences with doctors, their approaches, red flags, and practical takeaways from navigating complex chronic conditions.
From PNES and Suspected FND to C1 Paralysis: Amy Wang-Hiller's Story
2 weeks ago

Violinist Amy Wang-Hiller describes how suspected FND, a PNES diagnosis and repeated psychological attribution allegedly delayed recognition of tethered spinal cord, cervical instability and progressive paralysis.

FND: Movement FND: Seizures FND: Weakness Differential Patient story Diagnostic Dogma Organic Clues Patient Advocacy Doctor Encounters Rule-In Signs Diagnostic Overshadowing Misdiagnosis Clinical Reasoning Social Media
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FND subtypes
FND: Seizures 4
FND: Gait 2
FND: Movement 2
FND: Weakness 2
FND: Sensory 1
FND: Visual 1
Tags
Patient story 6
Help Wanted 1
Social Media 7
Misdiagnosis 4
Organic Clues 3
Patient Advocacy 3
Clinical Reasoning 2
Differential 2
Diagnostic Dogma 1
Diagnostic Overshadowing 1
Doctor Encounters 1
In the news 1
Rule-In Signs 1