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Harper’s Story: Exercise-Triggered Episodes, Abnormal EEG Findings, Then FND/PNES
An 11-year-old developed recurrent episodes of collapse, prolonged unresponsiveness, abnormal movements and post-event neurological symptoms, often after exercise or heat. Multiple EEGs failed to capture a typical episode, while two showed epileptiform abnormalities. Her episodes were eventually labelled FND/PNES. Her family is looking for others whose children followed a similar path.
From PNES and Suspected FND to C1 Paralysis: Amy Wang-Hiller's Story
Violinist Amy Wang-Hiller describes how suspected FND, a PNES diagnosis and repeated psychological attribution allegedly delayed recognition of tethered spinal cord, cervical instability and progressive paralysis.
When Something Doesn’t Add Up: The MRI That Finally Gave Me Another Lead
After years of worsening symptoms, repeated A&E visits and an FND diagnosis that never fully seemed to fit, a long-awaited MRI finally revealed cervical spine abnormalities that now require further investigation. This is a patient story about persistence, uncertainty and the importance of taking another look when something does not add up.