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State Rep. Tricia Byrnes Is Looking for the Filmmaker Who’ll Investigate FND
Missouri State Rep. Tricia Byrnes is seeking a filmmaker to investigate Functional Neurological Disorder. She says hundreds of families report children were labeled with FND before doctors fully checked seizures and loss of mobility, and that second opinions were blocked.
Harper’s Story: Exercise-Triggered Episodes, Abnormal EEG Findings, Then FND/PNES
An 11-year-old developed recurrent episodes of collapse, prolonged unresponsiveness, abnormal movements and post-event neurological symptoms, often after exercise or heat. Multiple EEGs failed to capture a typical episode, while two showed epileptiform abnormalities. Her episodes were eventually labelled FND/PNES. Her family is looking for others whose children followed a similar path.
From PNES and Suspected FND to C1 Paralysis: Amy Wang-Hiller's Story
Violinist Amy Wang-Hiller describes how suspected FND, a PNES diagnosis and repeated psychological attribution allegedly delayed recognition of tethered spinal cord, cervical instability and progressive paralysis.