Facebook Stories
Community trophies
Posts
3
State Rep. Tricia Byrnes Is Looking for the Filmmaker Who’ll Investigate FND
Missouri State Rep. Tricia Byrnes is seeking a filmmaker to investigate Functional Neurological Disorder. She says hundreds of families report children were labeled with FND before doctors fully checked seizures and loss of mobility, and that second opinions were blocked.
From PNES and Suspected FND to C1 Paralysis: Amy Wang-Hiller's Story
Violinist Amy Wang-Hiller describes how suspected FND, a PNES diagnosis and repeated psychological attribution allegedly delayed recognition of tethered spinal cord, cervical instability and progressive paralysis.
When Something Doesn’t Add Up: The MRI That Finally Gave Me Another Lead
After years of worsening symptoms, repeated A&E visits and an FND diagnosis that never fully seemed to fit, a long-awaited MRI finally revealed cervical spine abnormalities that now require further investigation. This is a patient story about persistence, uncertainty and the importance of taking another look when something does not add up.
Gaslit, Misdiagnosed, Then Heard: Living With MCTD, Small Fiber Neuropathy, and Dysautonomia
A reader shared this account from a woman misdiagnosed with FND who later learned she had mixed connective tissue disease (now lupus), small fiber neuropathy, and dysautonomia. She writes about autoimmune effects on the nervous system, getting a second opinion, and finding doctors who listen.