FND Nope
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Four Years of Dystonia: Meige Syndrome Misdiagnosed as FND
A 2024 case report describes a 42-year-old woman diagnosed and treated for FND despite persistent facial, oral and cervical movements. After treatment failed, neurology diagnosed Meige syndrome. The authors explicitly describe the original FND diagnosis as a misdiagnosis.
When an Unexplained Gait Became Conversion Disorder: A Huntington’s Disease Case
A 65-year-old woman with an abnormal gait, cognitive decline and psychiatric symptoms was diagnosed with conversion disorder after inconclusive neurological investigations. Years later, genetic testing confirmed Huntington’s disease—raising a difficult question: what positive evidence had established conversion disorder in the first place?
When Suppressible Movements Were Called Functional: A Genetic PKD Case
A 14-year-old boy was diagnosed with a functional movement disorder after presenting with suppressible involuntary movements and psychiatric comorbidity. Further investigation identified monogenic paroxysmal kinesigenic dyskinesia (PKD), while the authors noted that specific positive features supporting the original functional diagnosis had been absent.
FND, Then Genetic Dystonia: A Pediatric DYT-TOR1A Case
A pediatric patient diagnosed with Functional Neurological Disorder was later found to have DYT-TOR1A dystonia and responded well to deep brain stimulation. The authors retained FND as a coexisting diagnosis, raising an important question: once a genetic disorder capable of producing the movements was identified, what evidence determined which symptoms remained functional?
When Stress-Sensitive Stiffness Was Diagnosed as Conversion Disorder
A 52-year-old woman developed progressive leg stiffness, spasms and severe gait impairment that worsened with stress and fatigue. After multiple evaluations, she was diagnosed with conversion disorder. A year later, markedly elevated anti-GAD antibodies and characteristic EMG abnormalities supported stiff-person syndrome, with significant improvement following IVIG.
When Conversion Disorder Was Actually a Rare Prion Disease
A woman with tremor, speech problems and slowed movements was diagnosed with conversion disorder after early neurological investigations were unrevealing. As her condition progressively deteriorated, genetic testing ultimately confirmed Gerstmann–Sträussler–Scheinker disease caused by a rare PRNP mutation.
When “Functional” Signs Mislead: GSS Misdiagnosed as Conversion Disorder
A man whose variable, distractible and inconsistent neurological findings contributed to a diagnosis of conversion disorder continued to deteriorate for years. After his death, neuropathology and genetic testing confirmed Gerstmann-Sträussler-Scheinker syndrome, showing how genuine clinical observations can support the wrong diagnostic interpretation.
A Case of Sporadic Creutzfeldt-Jakob Disease Presenting as Conversion Disorder
A 64-year-old woman was diagnosed with a functional neurological movement disorder after clinicians observed distractibility, variability and entrainment. Within weeks, worsening symptoms and newly abnormal EEG and MRI findings reopened the investigation, and a brain biopsy confirmed sporadic Creutzfeldt-Jakob disease.
The Medical Journey of Megan Dixon: FND and Severe Disability
Megan Dixon became severely disabled following childhood illness, with progressive loss of mobility and speech leading to prolonged hospitalisation. She was later reportedly diagnosed with FND and underwent extended rehabilitation after years of severe impairment.
Comments
27Functional neurological disorder (FND) provides a significant diagnostic challenge because of its phenotypic heterogeneity https://t.co/SnIFREidii pic.twitter.com/zccm1f8e7J
— FndNope (@FndNope) March 15, 2026
Discussions started
7Share your FND memes and cartoons here.
Researchers say medicine doesnt work for FND but thats pure conjecture when no one fully knows what causes these symptoms or how the brain is glitching. We cant keep denying people treatments that might help just because of an unproven hypothesis. If it works for someone its usually just treating their claimed comorbidities like pain mood or sleep not the core FND itself. Stop gatekeeping based on theories. Personal results matter more than the current official line.
Whenever I read an FND advocacy page, I like to go back in time using the Internet Archive to see how the narrative has evolved. Comparing older versions with current ones often reveals not just changes in wording, but shifts in priorities and values.
- Original page: http://web.archive.org/web/20160904034822/https://www.fndaction.org.uk/diagnosis/
- Current page: https://www.fndaction.org.uk/diagnosis/
The 2016 page had soul. It was written by patients, for patients. It openly acknowledged the harm people experienced: being made to feel their symptoms were "their fault," being dismissed, left without support, and let down by inconsistent care. It felt urgent, validating, and unapologetically activist.
The current page feels sanitized and clinician focused. It reads as though it was edited by neurologists concerned about sounding too speculative or unscientific. The raw expression of patient suffering is gone. The frustration with poor care is gone. In its place are lengthy discussions of diagnostic pitfalls, positive signs, research priorities, and carefully worded disclaimers. It is all very proper, but it also feels cold and defensive.
Rather than centering the needs of people living with FND, the page seems more concerned with protecting the reputation of the diagnosis. The charity appears to have exchanged genuine patient advocacy for mainstream medical respectability, and in doing so, lost much of its original purpose and emotional impact.
The end result is a page that may be more technically accurate, but is significantly less human. It serves clinicians and the diagnosis better than it serves the patients who are suffering.
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This is the place to share the craziest "my FND did this" claims you’ve seen, hair loss, sudden allergies, psychic powers, eyes changing color, poltergeist activity, speaking unknown languages, etc.
Drop the most ridiculous ones below!
When we initially investigated FND, we were surprised to find almost no official skepticism.
Dr. David Tuller, through his “Trial By Error” series on virology.ws (https://virology.ws/tag/fnd/)He has challenged inflated prevalence claims, the reliability of diagnostic signs, and aspects of FND’s psychological framing.
Are there any other skeptical sources out there?