2 weeks ago FND Nope Moderator

0

Maddie Aumann was diagnosed with FND before genetic testing identified a rare SCN9A disorder. Her mother, Christine Aumann, describes how the FND label continued to affect Maddie’s care even after that discovery, ultimately helping inspire Maddie’s Law.

3 months ago mel Convalescent

10

Personal account of complex neurological and systemic symptoms following a tick bite, with a clinical diagnosis of FND made after extensive negative or inconclusive investigations. The author proposes an infectious origin involving Lyme disease and other tick-borne infections and reports improvement following targeted antibiotic treatment.

3 months ago Anonymous Parent Parental caregiver

2

An 18-year-old developed severe neurological symptoms after a concussion, was diagnosed with FND after inconclusive testing, and later found to have tethered cord syndrome requiring surgery.

4 months ago vi_toka Sufferer

9

Miranda’s health collapsed almost overnight, progressing from difficulty walking to seizures, psychosis, and rapid neurological decline. Despite abnormal findings and worsening symptoms, she was quickly labelled with Functional Neurological Disorder, and further testing was repeatedly refused. Her story raises serious concerns about missed conditions like Autoimmune encephalitis and the risks of diagnostic overshadowing blocking proper care.

7 months ago Anon. Kazakh Med Student Medical student

10

Email from a 21-year-old medical student in Kazakhstan sharing their detailed experience with neurological symptoms diagnosed as FND, highlighting objective signs of an organic lesion, diagnostic history, and concerns about misdiagnosis.

1 year ago Christoff Trüter Spousal caregiver

2

For the past seven years, my wife’s health has steadily declined, which forced me into research mode - diving deep into various medical fields through countless hours of studying medical journals, textbooks, clinical resources, and literature, as we were passed from specialist to specialist.