Social Media
Posts based on publicly shared accounts, discussions, or experiences from social media platforms such as Reddit, X, Facebook, and others.
FND Diagnosis Followed by Myasthenia Gravis and Respiratory Failure
Reddit Stories
Social media
A Reddit user questioned their FND diagnosis while being investigated for myasthenia gravis. Weeks later, they reported respiratory failure requiring intubation, an MG diagnosis and treatment with IVIG and plasma exchange. A later FND specialist assessment reportedly found no FND symptoms.
Misdiagnosed With FND: From Inpatient Rehabilitation to Neurosarcoidosis
Reddit Stories
Social media
A Reddit user documented severe neurological symptoms, an FND diagnosis and inpatient rehabilitation before further investigation reportedly revealed neurosarcoidosis. The patient later said their neurosurgeon found that the original hospital MRI already contained findings relevant to the eventual diagnosis.
FND Diagnosis Followed by Multiple System Atrophy
Reddit Stories
Social media
A Reddit user describes rapidly progressive neurological and autonomic symptoms that were diagnosed as FND despite their concerns that something else was wrong. Six months after publicly questioning the diagnosis and specifically raising MSA as a possibility, they updated their story to report that further investigation had resulted in a diagnosis of multiple system atrophy (MSA), by which point they were completely bedridden.
FND Diagnosis Followed by ALS and Metastatic Cancer
Reddit Stories
Social media
A Reddit user documents a two-year journey in which progressive neurological symptoms were attributed to FND before they later reported receiving an ALS diagnosis, followed by the discovery of metastatic bladder cancer.
When Something Doesn’t Add Up: The MRI That Finally Gave Me Another Lead
Facebook Stories
Social media
After years of worsening symptoms, repeated A&E visits and an FND diagnosis that never fully seemed to fit, a long-awaited MRI finally revealed cervical spine abnormalities that now require further investigation. This is a patient story about persistence, uncertainty and the importance of taking another look when something does not add up.
Gaslit, Misdiagnosed, Then Heard: Living With MCTD, Small Fiber Neuropathy, and Dysautonomia
Facebook Stories
Social media
A reader shared this account from a woman misdiagnosed with FND who later learned she had mixed connective tissue disease (now lupus), small fiber neuropathy, and dysautonomia. She writes about autoimmune effects on the nervous system, getting a second opinion, and finding doctors who listen.
Diagnosed with CNS lupus after initial FND diagnosis
Facebook Stories
Social media
A young woman with lupus and Sjögren’s was diagnosed with FND without an EEG, spinal tap, or extensive laboratory testing. Further investigation at another hospital revealed a previous stroke and autoimmune abnormalities, leading to a diagnosis of CNS lupus.
Three Heart Conditions Misdiagnosed as FND
Facebook Stories
Social media
A 38-year-old patient diagnosed with FND after limited testing was later found to have three treatable heart conditions that explained their symptoms, including extreme daily heart-rate fluctuations previously dismissed as anxiety.
Written Off with FND: The Hidden Dental Abscess That Changed Everything
Facebook Stories
Social media
After years of severe disability and an FND diagnosis, Sam’s family discovered a large, hidden abscess beneath a previously treated root-canal tooth. Within weeks of its removal and treatment, he began to regain his vision, mobility, clarity and independence. This is their story and a reminder that unexplained symptoms still deserve thorough investigation.
