1 month ago Facebook Stories Social media

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Missouri State Rep. Tricia Byrnes is seeking a filmmaker to investigate Functional Neurological Disorder. She says hundreds of families report children were labeled with FND before doctors fully checked seizures and loss of mobility, and that second opinions were blocked.

1 month ago FND Nope Moderator

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Maddie Aumann was diagnosed with FND before genetic testing identified a rare SCN9A disorder. Her mother, Christine Aumann, describes how the FND label continued to affect Maddie’s care even after that discovery, ultimately helping inspire Maddie’s Law.

3 months ago FND Nope Moderator

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A patient diagnosed with FND recovered completely after surgical repair of a CSF leak. Why did the diagnosis remain? This article explores what the case reveals about comorbidity, diagnostic reasoning, and the falsification problem in FND.

4 months ago Quackademic

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Does this nursing guide teach observation, or does it teach reinforcement of a diagnosis? A critical examination of how skepticism, alternative diagnoses, and diagnostic uncertainty are presented to nursing staff.

4 months ago Christoff Spousal caregiver

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An exploration of FND, positive rule-in signs, comorbidity, predictive processing, diagnostic closure, and whether functional symptoms may reflect common phenotypes arising from multiple underlying conditions.

4 months ago X stories Social media

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Tanea "Rebel" Brooks has faced a devastating battle with lymphoma and a terminal ALS diagnosis. This piece explores her difficult medical journey and raises the question I’ve been wondering about: Could Functional Neurological Disorder (FND) be playing a role in misdiagnosis or diagnostic confusion?

5 months ago FND Nope Moderator

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Megan Dixon became severely disabled following childhood illness, with progressive loss of mobility and speech leading to prolonged hospitalisation. She was later reportedly diagnosed with FND and underwent extended rehabilitation after years of severe impairment.

5 months ago mel Convalescent

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Personal account of complex neurological and systemic symptoms following a tick bite, with a clinical diagnosis of FND made after extensive negative or inconclusive investigations. The author proposes an infectious origin involving Lyme disease and other tick-borne infections and reports improvement following targeted antibiotic treatment.

5 months ago Anonymous Parent Parental caregiver

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An 18-year-old developed severe neurological symptoms after a concussion, was diagnosed with FND after inconclusive testing, and later found to have tethered cord syndrome requiring surgery.

5 months ago Christoff Spousal caregiver

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One of the most striking things you notice when you first start reading the literature on FND is how crucial it is considered for patients to accept and believe in the diagnosis. Without that belief, treatment is often regarded as futile. They simply will not get better.

6 months ago vi_toka Sufferer

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Miranda’s health collapsed almost overnight, progressing from difficulty walking to seizures, psychosis, and rapid neurological decline. Despite abnormal findings and worsening symptoms, she was quickly labelled with Functional Neurological Disorder, and further testing was repeatedly refused. Her story raises serious concerns about missed conditions like Autoimmune encephalitis and the risks of diagnostic overshadowing blocking proper care.

6 months ago Christoff Spousal caregiver

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A reflection on what makes a good doctor in the context of complex chronic illness, focusing on collaboration, systems thinking, and clinical humility.