State Rep. Tricia Byrnes Is Looking for the Filmmaker Who’ll Investigate FND
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Missouri State Rep. Tricia Byrnes is seeking a filmmaker to investigate Functional Neurological Disorder. She says hundreds of families report children were labeled with FND before doctors fully checked seizures and loss of mobility, and that second opinions were blocked.
Maddie Aumann: From an FND Diagnosis to Maddie’s Law
FND Nope
Moderator
Maddie Aumann was diagnosed with FND before genetic testing identified a rare SCN9A disorder. Her mother, Christine Aumann, describes how the FND label continued to affect Maddie’s care even after that discovery, ultimately helping inspire Maddie’s Law.
FND Might Be Nothing More Than a CNS Reflex
Christoff Trüter
Spousal caregiver
What do I mean when I hypothesize that Functional Neurological Disorder (FND) might be nothing more than a central nervous system reflex?
Using medication as a diagnostic tool
Christoff Trüter
Spousal caregiver
Over the centuries, doctors have devised a magnitude of methods to diagnose illnesses, from early clinical observations and skin prick tests, all the way through to X-rays, blood tests, ECGs, lumbar punctures, biopsies, mammograms, ultrasounds, endoscopies, stress tests, genetic testing, CT scans, MRIs, and functional imaging like PET scans, just to name a few.
The Dark Truth Behind the 4% Misdiagnosis Rate in Functional Neurological Disorder
FND Nope
Moderator
When presented with a misdiagnosis rate for FND of just around 4%, it sounds impressive - who wouldn’t be tempted to jump on the bandwagon? Surely this means doctors have the disorder all figured out, backed by mountains of rock-solid, empirically proven evidence. Right? A disorder that is believed to live on the fringes of neurology and psychiatry - what could possibly go wrong?
Who am I? Why am I doing this?
Christoff Trüter
Spousal caregiver
For the past seven years, my wife’s health has steadily declined, which forced me into research mode - diving deep into various medical fields through countless hours of studying medical journals, textbooks, clinical resources, and literature, as we were passed from specialist to specialist.
FND: A Diagnosis That Shuts Doors?
FND Nope
Moderator
A critical examination of Functional Neurological Disorder, its historical roots, diagnostic evolution, and whether the shift to a positive diagnosis risks closing the door on further investigation.
