State Rep. Tricia Byrnes Is Looking for the Filmmaker Who’ll Investigate FND
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Missouri State Rep. Tricia Byrnes is seeking a filmmaker to investigate Functional Neurological Disorder. She says hundreds of families report children were labeled with FND before doctors fully checked seizures and loss of mobility, and that second opinions were blocked.
Maddie Aumann: From an FND Diagnosis to Maddie’s Law
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Maddie Aumann was diagnosed with FND before genetic testing identified a rare SCN9A disorder. Her mother, Christine Aumann, describes how the FND label continued to affect Maddie’s care even after that discovery, ultimately helping inspire Maddie’s Law.
FND Diagnosis Revised to Progressive Supranuclear Palsy (PSP)
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A published case report documents a patient initially diagnosed with FND whose progressive neurological deterioration led to further investigation and an eventual diagnosis of progressive supranuclear palsy (PSP).
A Case Report of Headache and Weakness Diagnosed as Functional Neurological Disorder
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A 26-year-old postpartum woman presenting with headache and neurological symptoms was discharged with anxiety and possible conversion disorder. She returned the following morning unable to walk. MRI revealed a thalamic infarction caused by cerebral venous thrombosis. The case also raises a broader question: if later disease does not necessarily invalidate an FND diagnosis, how is FND misdiagnosis actually identified and counted?
Misdiagnosed With FND: From Inpatient Rehabilitation to Neurosarcoidosis
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A Reddit user documented severe neurological symptoms, an FND diagnosis and inpatient rehabilitation before further investigation reportedly revealed neurosarcoidosis. The patient later said their neurosurgeon found that the original hospital MRI already contained findings relevant to the eventual diagnosis.
Diagnosed With FND After Three Weeks: 200 Seizures Later, Doctors Found Severe Hypoglycaemia
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Diagnosed with FND after three weeks, an Australian teenager endured around 200 seizures before severe hypoglycaemia linked to a gastrointestinal motility disorder was identified.
FND Diagnosis Followed by Multiple System Atrophy
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A Reddit user describes rapidly progressive neurological and autonomic symptoms that were diagnosed as FND despite their concerns that something else was wrong. Six months after publicly questioning the diagnosis and specifically raising MSA as a possibility, they updated their story to report that further investigation had resulted in a diagnosis of multiple system atrophy (MSA), by which point they were completely bedridden.
FND Diagnosis Followed by ALS and Metastatic Cancer
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A Reddit user documents a two-year journey in which progressive neurological symptoms were attributed to FND before they later reported receiving an ALS diagnosis, followed by the discovery of metastatic bladder cancer.
If FND Is Not ‘We Don’t Know’... What Exactly Do We Know?
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What do we actually know when we diagnose FND? A look at the epistemic limits of the diagnosis, the danger of treating unknowns as knowns, and how overstating certainty can contribute to diagnostic overshadowing and undermine advocacy.
When Something Doesn’t Add Up: The MRI That Finally Gave Me Another Lead
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After years of worsening symptoms, repeated A&E visits and an FND diagnosis that never fully seemed to fit, a long-awaited MRI finally revealed cervical spine abnormalities that now require further investigation. This is a patient story about persistence, uncertainty and the importance of taking another look when something does not add up.
What I Wish I Knew When I First Got Diagnosed With FND
I was diagnosed with FND 2 years ago, with symptoms first appearing 3-4 years ago. I am a female in my 20s. Here are a few things I wish I knew when I first got diagnosed (these are all just my opinions based on my experience, they are not facts)clinician
Gaslit, Misdiagnosed, Then Heard: Living With MCTD, Small Fiber Neuropathy, and Dysautonomia
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A reader shared this account from a woman misdiagnosed with FND who later learned she had mixed connective tissue disease (now lupus), small fiber neuropathy, and dysautonomia. She writes about autoimmune effects on the nervous system, getting a second opinion, and finding doctors who listen.
