State Rep. Tricia Byrnes Is Looking for the Filmmaker Who’ll Investigate FND
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Missouri State Rep. Tricia Byrnes is seeking a filmmaker to investigate Functional Neurological Disorder. She says hundreds of families report children were labeled with FND before doctors fully checked seizures and loss of mobility, and that second opinions were blocked.
Maddie Aumann: From an FND Diagnosis to Maddie’s Law
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Maddie Aumann was diagnosed with FND before genetic testing identified a rare SCN9A disorder. Her mother, Christine Aumann, describes how the FND label continued to affect Maddie’s care even after that discovery, ultimately helping inspire Maddie’s Law.
AI Helped Diagnose a Rare Disease. Why the Warnings?
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After parents used ChatGPT to identify their daughter's rare genetic condition, a BBC report emphasised the dangers of AI-assisted diagnosis. But what happens when conventional medical care overlooks the possibilities that AI can help uncover?
Jo Puckett's FND Story in the Daily Mail: Questions Worth Asking
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A Daily Mail article about Jo Puckett's experience with FND raises questions about diagnostic certainty, psychological distress, medical dismissal and the difference between wanting answers and wanting to remain ill.
FND and Autism: Does Diagnostic Overlap Establish Comorbidity?
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A 2025 study found an association between FND and autism diagnoses. But historical diagnostic codes, unresolved differentials and the possibility of shared phenotypes raise questions about whether the findings establish genuine comorbidity.
When Dysautonomia Is Found, Does FND Get a Free Pass?
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Seventeen patients previously diagnosed with psychogenic seizures were found to have autonomic abnormalities. When the study prompted claims that FND and dysautonomia can coexist, it raised a more important question: what evidence justifies retaining the original diagnosis.
My daughter
I would like to share my daughter’s story and what Functional Neurological Disorder has done to her life over the past three years.Before FND, my daughter was a creative, talented teenager who loved music, performing, makeup and hair. She had dreams for
Why We Share These Stories
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Why FND Nope shares patient stories, diagnostic reversals and clinical cases: not to win an argument, but to preserve uncertainty, uncover possible clues and keep doors open when people are still sick.
She Asked if It Was Hemiplegic Migraine. Her Neurologist Diagnosed FND
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A Reddit user describes recurrent episodes of one-sided paralysis that were diagnosed as FND. She says she raised hemiplegic migraine herself but it was rejected. Three years later, a headache specialist diagnosed chronic hemiplegic migraine, and she reports substantial improvement with migraine treatment.
Four Years of Dystonia: Meige Syndrome Misdiagnosed as FND
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A 2024 case report describes a 42-year-old woman diagnosed and treated for FND despite persistent facial, oral and cervical movements. After treatment failed, neurology diagnosed Meige syndrome. The authors explicitly describe the original FND diagnosis as a misdiagnosis.
Severe Hypoglycaemia Mistaken for Conversion Disorder
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A 2025 case report describes a 17-year-old with type 1 diabetes whose abnormal behaviour and movements were initially attributed to conversion disorder. Glucose readings of 36 and 24 mg/dL during attacks revealed severe hypoglycaemia, and the conversion diagnosis was withdrawn.
When an Unexplained Gait Became Conversion Disorder: A Huntington’s Disease Case
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A 65-year-old woman with an abnormal gait, cognitive decline and psychiatric symptoms was diagnosed with conversion disorder after inconclusive neurological investigations. Years later, genetic testing confirmed Huntington’s disease—raising a difficult question: what positive evidence had established conversion disorder in the first place?
