State Rep. Tricia Byrnes Is Looking for the Filmmaker Who’ll Investigate FND
Facebook Stories
Social media
Missouri State Rep. Tricia Byrnes is seeking a filmmaker to investigate Functional Neurological Disorder. She says hundreds of families report children were labeled with FND before doctors fully checked seizures and loss of mobility, and that second opinions were blocked.
Maddie Aumann: From an FND Diagnosis to Maddie’s Law
FND Nope
Moderator
Maddie Aumann was diagnosed with FND before genetic testing identified a rare SCN9A disorder. Her mother, Christine Aumann, describes how the FND label continued to affect Maddie’s care even after that discovery, ultimately helping inspire Maddie’s Law.
Havana Syndrome: When an Unexplained Neurological Illness Becomes FND
FND Nope
Moderator
NIH researchers classified 28% of Havana syndrome patients as having FND, despite unresolved questions about the origins of their symptoms, conflicting earlier research and warnings that different conditions may have been grouped together. Does identifying a functional phenotype actually explain what happened?
Three Seizures, Three Accents, One FND Diagnosis: What Was Actually Ruled Out?
FND Nope
Moderator
A musician developed changing accents after reported seizures, a head injury and cardiac arrest. Doctors diagnosed FND. But what neurological explanations were investigated, and what evidence supports the diagnosis?
When Ignorance Becomes a Diagnosis: FND Experts Warn of Diagnostic Failure
Quackademic
FND researchers acknowledge that weak functional signs lack specificity, neurologists disagree, and unfamiliar diseases risk being labelled functional. The diagnostic problem is hiding in plain sight.
94.4% of Ehlers–Danlos Patients Reported Psychiatric Labelling or Dismissal. Two-Thirds Reported Conversion Disorder
FND Nope
Moderator
A 2025 study of 429 patients with hypermobile Ehlers–Danlos syndrome found that 94.4% reported psychiatric labelling or accusations of fabrication, while 66.7% reported a previous conversion disorder diagnosis. The findings raise serious questions about diagnostic dismissal, medical credibility and missed physical illness.
Four Years Diagnosed With FND Before a DaTscan and Parkinson's Diagnosis
Reddit Stories
Social media
A Reddit user reports spending four years diagnosed with FND before receiving a Parkinson's disease diagnosis following a DaTscan. They say appropriate medication improved their condition, raising questions about the original diagnosis and the consequences of delayed investigation.
When a Genetic Neurological Disorder Was Considered Functional: The FLVCR1 Case
FND Nope
Moderator
A woman with progressive neurological symptoms and documented FLVCR1 variants repeatedly had her symptoms considered functional. A 2026 case report exposes a failure to connect neurological findings with an existing genetic disorder.
When Defending FND Means Missing the Point
Quackademic
David Healy's warning that drug toxicity can disappear behind an FND diagnosis has provoked predictable criticism. But much of the response confuses how FND is supposed to be diagnosed with how it is actually diagnosed. The literature itself shows misdiagnosis, overdiagnosis and diagnostic overshadowing occur. You can dislike Healy's language. You still have to answer his argument.
FND, Until It Was Inoperable Tongue Cancer
FND Nope
Moderator
A 58-year-old woman with progressive swallowing and speech problems was diagnosed with functional movement disorder. Eleven months after onset, repeat imaging found advanced squamous-cell carcinoma. The authors say diagnostic bias from the FMD diagnosis even caused abnormal swallowing findings to be misinterpreted.
FND Hope's Founder, a Misdiagnosis, and Sneddon's Syndrome
FND Nope
Moderator
FND treatment is built around assumptions about why symptoms occur. But what happens when those assumptions are wrong? Bridget Mildon's Sneddon's syndrome and Rebel's later ALS diagnosis raise an uncomfortable patient-safety question: how safe is mechanism-specific treatment when the mechanism itself remains uncertain?
I Am Angry
Christoff
Spousal caregiver
I am angry that uncertainty became certainty, that softened language obscures what is actually being claimed, that scepticism is treated as hostility, and that while we argue about FND, my wife keeps getting sicker.
