1 week ago Facebook Stories Social media

0

Missouri State Rep. Tricia Byrnes is seeking a filmmaker to investigate Functional Neurological Disorder. She says hundreds of families report children were labeled with FND before doctors fully checked seizures and loss of mobility, and that second opinions were blocked.

2 weeks ago FND Nope Moderator

0

Maddie Aumann was diagnosed with FND before genetic testing identified a rare SCN9A disorder. Her mother, Christine Aumann, describes how the FND label continued to affect Maddie’s care even after that discovery, ultimately helping inspire Maddie’s Law.

1 week ago FND Nope Moderator

0

What do we actually know when we diagnose FND? A look at the epistemic limits of the diagnosis, the danger of treating unknowns as knowns, and how overstating certainty can contribute to diagnostic overshadowing and undermine advocacy.

1 week ago Facebook Stories Social media

1

After years of worsening symptoms, repeated A&E visits and an FND diagnosis that never fully seemed to fit, a long-awaited MRI finally revealed cervical spine abnormalities that now require further investigation. This is a patient story about persistence, uncertainty and the importance of taking another look when something does not add up.

2 weeks ago Aussie Girl

1

I was diagnosed with FND 2 years ago, with symptoms first appearing 3-4 years ago. I am a female in my 20s. Here are a few things I wish I knew when I first got diagnosed (these are all just my opinions based on my experience, they are not facts)clinician

2 weeks ago Facebook Stories Social media

1

A reader shared this account from a woman misdiagnosed with FND who later learned she had mixed connective tissue disease (now lupus), small fiber neuropathy, and dysautonomia. She writes about autoimmune effects on the nervous system, getting a second opinion, and finding doctors who listen.

2 weeks ago Functional Nurse

5

The biggest misconception out there is that someone can’t have a functional disorder if they also have an organic medical disease, disorder, or condition. The reality, of course, is that very, very rarely do functional disorders develop without an underly

2 weeks ago FND Nope Moderator

0

How do we know when a medical diagnosis has actually been demonstrated rather than simply defined? This post examines FND through ontology, epistemology and axiology, asking what positive signs really establish, where classification ends and explanation begins, and whether the confidence placed in the diagnosis matches the strength of the evidence behind it.

3 weeks ago Christoff Trüter Spousal caregiver

5

An open letter addressing the removal of a disputed cartoon, clarifying what was—and was not—claimed, and reaffirming FND Nope’s commitment to open and critical discussion of the FND framework.

1 month ago Facebook Stories Social media

0

A young woman with lupus and Sjögren’s was diagnosed with FND without an EEG, spinal tap, or extensive laboratory testing. Further investigation at another hospital revealed a previous stroke and autoimmune abnormalities, leading to a diagnosis of CNS lupus.

1 month ago Facebook Stories Social media

0

A 38-year-old patient diagnosed with FND after limited testing was later found to have three treatable heart conditions that explained their symptoms, including extreme daily heart-rate fluctuations previously dismissed as anxiety.

1 month ago Francesca Parker

3

An ENT doctor suggested I had Menieres (an illness that attacks the balance nerve and the ear) in 2023. He wasn't sure as he said the disease is rare and my hearing loss was in the wrong frequency. He said there is no cure and I would have to wait for bur